US EditionArizona Becomes the 31st State With a Rare Disease Advisory Council
- On May 12, 2025, Governor Katie Hobbs approved legislation introduced as House Bill 2380, creating a new advisory council focused on addressing the needs of individuals in Arizona affected by rare diseases.
- Representative Alma Hernandez introduced the legislation after two years collaborating with stakeholders and patient organizations, including NORD's support.
- The RDAC will provide recommendations to enhance specialist availability, ensure affordable healthcare options, and support prompt diagnosis and effective treatment for individuals in Arizona living with rare diseases.
- More than 10,000 rare diseases exist, with about 5% having FDA-approved treatments; approximately one in 10 Arizonans live with these conditions affecting 30 million Americans nationwide.
- With the governor’s approval, Arizona now joins 30 other states in establishing an RDAC, showcasing the impact of strong grassroots efforts and providing renewed optimism for collaboratively addressing the healthcare needs of those affected by rare diseases.
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Leaning Left1Leaning Right0Center9Last UpdatedBias Distribution90% Center
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