Decisions, decisions: When to share the news that you have ALS

Decisions, decisions: When to share the news that you have ALS

When my doctor told me that I had ALS, my reaction was like that of most newly diagnosed ALS patients. I felt a jumble of emotions and desperately wanted to let my friends and family know — but something held me back. Deep down I knew that when I told others about my ALS, it’d become real, and I’d have to accept that I had ALS. But I also wanted to wait, thinking I needed to process every detail and each emotion, and have everything in order bef…