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Kennedy launches US autism project using Medicare and Medicaid data

  • On May 7, 2025, a pilot initiative was launched to create a Medicare and Medicaid database centered on autism and various chronic diseases, aimed at supporting research into their underlying causes.
  • This initiative stems from HHS Secretary Robert F. Kennedy Jr.'s effort to identify autism's root causes by September, despite rebukes and doubts from advocacy groups and scientists.
  • The database will combine insurance claims, medical records, and wearable technology data to support research led by NIH Director Dr. Jay Bhattacharya on autism and chronic disease burdens.
  • Experts note limitations to Medicare and Medicaid data coverage and emphasize stringent privacy laws, with Helen Tager-Flusberg remarking, "There are also limitations to CMS data."
  • The project aims to accelerate scientific research but raises concerns in the autism community about data access and privacy, reflecting broader uncertainties about the timeline to find autism causes.
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WirePoints Illinois Financial News broke the news in on Wednesday, May 7, 2025.
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