Kennedy launches US autism project using Medicare and Medicaid data
- On May 7, 2025, a pilot initiative was launched to create a Medicare and Medicaid database centered on autism and various chronic diseases, aimed at supporting research into their underlying causes.
- This initiative stems from HHS Secretary Robert F. Kennedy Jr.'s effort to identify autism's root causes by September, despite rebukes and doubts from advocacy groups and scientists.
- The database will combine insurance claims, medical records, and wearable technology data to support research led by NIH Director Dr. Jay Bhattacharya on autism and chronic disease burdens.
- Experts note limitations to Medicare and Medicaid data coverage and emphasize stringent privacy laws, with Helen Tager-Flusberg remarking, "There are also limitations to CMS data."
- The project aims to accelerate scientific research but raises concerns in the autism community about data access and privacy, reflecting broader uncertainties about the timeline to find autism causes.
265 Articles
265 Articles
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