US EditionThe emotional toll of caring for a child with hemophilia
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The emotional toll of caring for a child with hemophilia
Recently, I attended the Florida Bleeding Disorders Association’s Women’s Educational Retreat in Hollywood, Florida. I came away with several important takeaways, but one presentation by Lucila Ramirez Donaldson of Genentech truly resonated: caregiver burnout. Many of the women attending were mothers or partners of people living with hemophilia. I’ve always been in awe of these mothers. Imagine having to insert a needle into your squirming 2-yea…
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