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Our son's Prader-Willi diagnosis sparked a journey of advocacy

Summary by Prader-Willi Syndrome News
People often ask me, “How did you become such a strong advocate?” Many times, I’ll begin my story with the birth of our son, but it really started when I was 24. A year after my husband and I were married, when we were excited for the future we would build together, I received a devastating cancer diagnosis and was told I’d never have children. Fast forward 10 years, and I gave birth to our daughter. We realized what a miracle she was and were e…
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Prader-Willi Syndrome News broke the news in on Friday, May 9, 2025.
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