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News from Prader-Willi Syndrome News

Stay current with all the latest and breaking news from Prader-Willi Syndrome News. Compare headlines and media bias behind news outlets on stories breaking today.

In total, 5 have been published by Prader-Willi Syndrome News which Ground News has aggregated in the past 3 months.

The Ground News media bias check for Prader-Willi Syndrome News is unknown. Scores are assigned by aggregating bias scores from Ad Fontes Media, Media Bias/Fact Check, and All Sides.

If you want to know if Prader-Willi Syndrome News is credible or reliable, look no further. We rank Prader-Willi Syndrome News as Unknown factuality. Find out more about our methodology here.

Stay current with all the latest and breaking news from Prader-Willi Syndrome News. Compare headlines and media bias behind news outlets on stories breaking today. In total, 5 have been published by Prader-Willi Syndrome News which Ground News has aggregated in the past 3 months.

The Ground News media bias check for Prader-Willi Syndrome News is unknown. Scores are assigned by aggregating bias scores from Ad Fontes Media, Media Bias/Fact Check, and All Sides. If you want to know if Prader-Willi Syndrome News is credible or reliable, look no further. We rank Prader-Willi Syndrome News as Unknown factuality. Find out more about our methodology here.

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Top Prader-Willi Syndrome News News

Top-line Phase 3 trial data on PWS nasal spray expected this year

United States · United States

Top-line Phase 3 trial data on PWS nasal spray expected this year

Thanks to strong enrollment in a Phase 3 clinical trial of Acadia Pharmaceuticals’ ACP-101 — an experimental nasal spray of carbetocin for treating hyperphagia in Prader-Willi syndrome (PWS) — the company announced that it now expects to have top-line data later this year. That trial, COMPASS PWS (NCT06173531), is testing the therapy candidate in an estimated 170 people with the rare genetic disease. Hyperphagia, or uncontrollable hunger, is PWS…Read Article

Our son's Prader-Willi diagnosis sparked a journey of advocacy

Mississippi · Mississippi

Our son's Prader-Willi diagnosis sparked a journey of advocacy

People often ask me, “How did you become such a strong advocate?” Many times, I’ll begin my story with the birth of our son, but it really started when I was 24. A year after my husband and I were married, when we were excited for the future we would build together, I received a devastating cancer diagnosis and was told I’d never have children. Fast forward 10 years, and I gave birth to our daughter. We realized what a miracle she was and were e…Read Article

Bonding helps ease family stress faced by PWS patients' relatives

Mental Health · Mississippi

Bonding helps ease family stress faced by PWS patients' relatives

Parents and siblings of people with Prader-Willi syndrome (PWS) commonly experience stress and other mental health challenges, but greater family cohesion, or bonding, helped buffer against these adverse outcomes, according to a study that surveyed people from around the world. In questionnaires completed by parents, parental depression, anxiety, and stress were common, while symptoms of post-traumatic stress disorder (PTSD) were prevalent in si…Read Article

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Hyperphagia treatment Vykat XR for PWS now available in US

Hyperphagia treatment Vykat XR for PWS now available in US

The first eligible Prader-Willi syndrome (PWS) patients in the U.S. have received their prescriptions for Vykat XR (diazoxide choline) — the once-daily, extended-release tablets now approved as a treatment for hyperphagia, or insatiable hunger, in people with PWS, ages 4 and older. Soleno Therapeutics’ Vykat XR became available on the market less than a month after it was approved in March by the U.S. Food and Drug Administration (FDA), accordin…Maryland · Maryland Read Article

US FDA approves first treatment for hyperphagia in Prader-Willi syndrome

US FDA approves first treatment for hyperphagia in Prader-Willi syndrome

72% Center coverage: 14 sources

The United States Food and Drug Administration (US FDA) has approved VYKAT™ XR, a significant milestone as the first approved treatment for hyperphagia in Prader-Willi syndrome (PWS).FDA · United States See the Story

An ancient RNA-guided system could simplify delivery of gene editing therapies

An ancient RNA-guided system could simplify delivery of gene editing therapies

A vast search of natural diversity has led scientists at MIT's McGovern Institute and the Broad Institute of MIT and Harvard to uncover ancient systems with the potential to expand the genome-editing toolbox. These systems, which the researchers call TIGR (Tandem Interspaced Guide RNA) systems, use RNA to guide them to specific sites on DNA.Gene Editing · Cambridge See the Story